This is my first piece for Healthline on a topic I’ve not really written about – my health. I’ve not really considered writing about Psoriatic Arthritis It all started with this tweet – a callout for a writer who also had PsA:
WritingCommunity Seeking pitches from writers living with #psoriaticarthritis. Interested in POVs about the experience of living with your condition as well as tip-based content! email in bio. #chronicillness #disabledwriters #spoonies
I didn’t know what Healthline was looking for in particular when it came to Psoriatic Arthritis but I sent an email and learned they wanted someone to write about “Things I Wish People Understood About Psoriatic Arthritis.”
I was really apprehensive about taking this assignment because I did not want to write an article that prompted pity or came across as wanting anyone to feel sorry for me but I also wanted to be honest about autoimmune disease and PsA in particular. There’s a balance there. There’s also a vulnerability.
“There’s no runny nose to signal to everyone else that I’m constantly in the midst of battle. I’ve always wanted a T-shirt that read, “I’m so bad, I kick my own ass.”
Needless to say, I wrote the article 8 Things I Wish People Understood About Psoriatic Arthritis and I do hope you’ll read it. Linked below:
8 Things I Wish People Understood About Psoriatic Arthritis
PsA is an unpredictable and often invisible illness that is hard to manage — and even harder to understand.
For more articles from Bonnie on Health check out her Clips Page Here or click on the recommended articles below:
‘Survival no longer a given:’ Mom with autoimmune disease asks everyone to get a flu shot
By getting a flu shot, you can “help me protect myself and my family. It means everything to me, really,” said a mom with an autoimmune disease.
Opinion: Tattooing over scars helps with trauma, healing; Kentucky’s ban a loss of that control
For so many people who decide to turn a scar into a beautiful tattoo, it gives them some sort of control over their trauma. It helps the healing.
Gamer Girls: Online Sexism And Video Game Safety for Young Girls
After a seven-month legal battle, the courts ruled and then Ohio Department of Health continued to stall. I was super frustrated. Each email from ODH angered me. You see, I was a wrier on the Eye on Ohio project that aimed to report hospital capacity numbers for the public during this COVID-19 pandemic. Our whole team was tired and frustrated for having to continue to argue with the ODH lawyer to gain access to what the courts had confirmed was public record.
I decided to write an op-ed. I am a freelance writer but I’m also a columnist on the Editorial Board of the Cincinnati Enquirer. So, I wrote the op-ed linked below to specifically call out the Socrates Tuch, the ODH Lawyer who insisted on giving us a hard time. The op-ed appeared on Saturday, November 21, 2020.
Read that Op-Ed Here:
Opinion: Ohio Department of Health needs to release hospital data
Despite a court order, Ohio Department of Health officials are slow to release data on the number of beds and ventilators available across the state.
The following Monday, November 23, 2020, ODH Press Secretary Melanie Amato sent an email that stated:
Here is the latest information on your public records request. Moving forward, please send your requests to me for I will be supplying you with the information. Please stop sending to the legal counsel for they have other things to continue to work on. I appreciate the help.
Melanie Amato
Magically the data we requested started rolling in and Socrates Tuch was taken out of the loop.
Don’t ever underestimate the power of an op-ed column.
Now, the citizens of Ohio have a clear understanding of what the hospitals in their state are facing with COVID-19. Click the link below to check on the capacity of each hospital that is reporting data. It will help individual communities cope with what’s happening in their area.
Ohio’s Hospital Capacity Data in Ten Charts
Interactive: Explore Newly Released Hospital Data This article provided by Eye on Ohio, the nonprofit, nonpartisan Ohio Center for Journalism. Please join our free mailing list as this helps us provide more public service reporting. Updated: Additional data from Nov. 21-24 released on Nov. 27. Ohio’…
Bonnie Jean Feldkamp
Bonnie Jean Feldkamp is an award-winning freelance writer and columnist. She is the Communications Director for the National Society of Newspaper Columnists, member of the Cincinnati Enquirer Editorial Board, and a board member for the Cincinnati Chapter of the Society of Professional Journalists. She lives with her family in Northern Kentucky. Find her on social media @WriterBonnie.
“They’ll understand when they’re older.” It’s meant to be comforting: When our kids are parents struggling to do the right thing, they’ll realize how tough it all is. But the part no one tells you is that just because they may one day understand that you did the best you could, that doesn’t necessarily mean they’ll agree with your decisions.
A lot of recent conversations with my 19-year-old daughter have revolved around parenting decisions I made in her childhood that she disagrees with. She feels some have even caused lasting damage. Ouch. That hurts. I love my children, but love doesn’t make anyone a perfect parent. We’re all still human, just doing the best we can. I know my intentions, but I also know that I still don’t agree with every parenting decision my parents made. My goal was to be better than my parents, but I’m not any better—I’m just different.
Read what learned from the experts in my latest column below:
When Teens Question Their Parents, It’s All Part of Growing Up – Your Teen Mag
It’s uncomfortable and it hurts, but teens inevitably question and sometimes reject their parents’ ideas. It’s all part of growing up.
Read more of my work on child development and parenting
Video Game Safety For Girls
How do girl gamers deal with online harassment? And how can parents help?
Staying Home: Hard but Necessary for Teenagers
Quarantine may cause asymptomatic teens to have mental health concerns. How to talk about COVID-19 and balance your teen’s choices and feelings.
Despite an October 20 court order issued by the Ohio Court of Claims, the Ohio Department of Health still had not released complete records as of late Wednesday night, claiming they needed several days to release information from a database that is updated daily. Read the full story below.
Ohio Department of Health delays full records release despite court order
33 hospitals report they have no critical care bed and/or medical/surgery bed for adult patients on October 30 This article provided by Eye on Ohio, the nonprofit, nonpartisan Ohio Center for Journalism. Please join our free mailing list as this helps us provide more public service reporting. Despit…
This came after winning the court battle for access to important hospital data. Read that story below:
After seven month legal battle, Eye on Ohio wins public records lawsuit over hospital capacity numbers
Court of Claims Rules that the Ohio Department of Health must disclose the number of beds and other equipment available This article provided by Eye on Ohio, the nonprofit, nonpartisan Ohio Center for Journalism. Please join our free mailing list as this helps us provide more public service reportin…
This all started seven months ago when we first tried to report data in real time as a service to the public during a pandemic. Our attempts were blocked by ODH. Read that story below
Ohio hospitals remain mum on changes to local bed and ventilator counts; uncertainty affects local patients
The Ohio Department of Health gets daily updates on the total number of beds and ventilators that could be available for COVID-19 patients at hospitals throughout the state. But so far the agency hasn’t provided any hospital-by-hospital breakdown, and the agencies that collect capacity information o…
Read more pandemic Coverage from Bonnie Jean Feldkamp HERE.
This story went from slow motion to fast forward this week. It started 7 months ago when we tried reporting on bed and vent counts in Ohio Hospitals only to be shut out. Eye On Ohio took them to court. After a months long back and forth the court ordered Ohio Department of Health to hand over the hospital data we requested in our public records request. We’re still waiting on the data. Meanwhile Court News Ohio ran a story on the ruling and other media is picking it up. So yesterday we were off to the races to cover our own story. Written with Kathiann M. Kowalski. Please read and share.
After seven month legal battle, Eye on Ohio wins public records lawsuit over hospital capacity numbers
Court of Claims Rules that the Ohio Department of Health must disclose the number of beds and other equipment available This article provided by Eye on Ohio, the nonprofit, nonpartisan Ohio Center for Journalism. Please join our free mailing list as this helps us provide more public service reportin…
Our report from seven months ago:
Ohio hospitals remain mum on changes to local bed and ventilator counts; uncertainty affects local patients
The Ohio Department of Health gets daily updates on the total number of beds and ventilators that could be available for COVID-19 patients at hospitals throughout the state. But so far the agency hasn’t provided any hospital-by-hospital breakdown, and the agencies that collect capacity information o…
Bonnie Jean Feldkamp is an award-winning freelance writer and columnist. She is the Communications Director for the National Society of Newspaper Columnists, member of the Cincinnati Enquirer Editorial Board, and a board member for the Cincinnati Chapter of the Society of Professional Journalists. She lives with her family in Northern Kentucky. Find her on social media @WriterBonnie.
